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  • Writer's pictureCarla

Clare's Groovy Button

As part of Clare's radiation treatment she will need to be sedated each day. It turns out that 2 year olds are not good at remaining still for more than 6 seconds at a time. Clare received her port on Wednesday, June 27, 2018. This port will allow the doctors to sedate her without having to give her an IV every day.

The port surgery and recovery was a bit more stressful than I thought it would be, but two hours after we got home, Clare had requested "Let it Go" be played on a loop so she could sing and shoot imaginary icicles from her hands, just like Elsa.

Chris and I are trying to make this horrible experience relatable to a 2 year old. A lot doesnt make sense to her. A lot doesnt make sense to us, for that matter. But we knew "port" wouldn't make sense to Clare, so we decided to call the port a "button."

Clare really likes Pete the Cat. Pete has a book about his groovy buttons, so we thought it may be a good comparison. We also got her a Pete the Cat doll with 4 groovy buttons. I was so excited about Pete the Cat... Until my friend Stacey sent a box of goodies for Clare that included a baby Elsa doll. As soon as that arrived, Pete the Cat was worthless. Now he will just lie with all the other "amazing" toys I purchased that Clare doesn't have time for.

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