CarlaJul 30, 20182 minChild Life SpecialistsEvery morning when we stroll into room 11 at Seidman Cancer Center we are greeted by Child Life Specialists. What is a Child Life Special...
CarlaJul 23, 20181 minButton BuddyMonday's are hard for everyone. Monday's are particularly hard for Clare because her groovy button needs to be accessed so she can recei...
CarlaJul 18, 20182 minBubbles and BumblebeesBecause our new radiation routine is not exactly fun, we try to have fun before and after the treatment. Clare cannot eat and can only dr...
CarlaJul 15, 20182 minMaren JamesWhen Clarie was initially diagnosed Chris and I spent weeks in what I am calling a "fog." And we are still in this weird place where I ha...
CarlaJul 9, 20181 minPop Pop's MustacheFor 40 years Ken Ronnebaum has had a mustache. 4-0 years. Longer than I have been alive. His mustache is part of who he is, and his wife,...
CarlaJul 9, 20181 minI Love You Too Much We tried to teach Clare how to say "I love you" when she started speaking as a toddler. I would tell her that her that I love her, and sh...
CarlaJul 9, 20181 minClare's Groovy ButtonAs part of Clare's radiation treatment she will need to be sedated each day. It turns out that 2 year olds are not good at remaining stil...
CarlaJul 9, 20182 minWhat is DIPG?On Monday, June 18, 2018, Clare was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a brain tumor found in a part of the ...