Child Life Specialists

Every morning when we stroll into room 11 at Seidman Cancer Center we are greeted by Child Life Specialists. What is a Child Life...

Button Buddy

Monday's are hard for everyone. Monday's are particularly hard for Clare because her groovy button needs to be accessed so she can...

Bubbles and Bumblebees

Because our new radiation routine is not exactly fun, we try to have fun before and after the treatment. Clare cannot eat and can only...

Maren James

When Clarie was initially diagnosed Chris and I spent weeks in what I am calling a "fog." And we are still in this weird place where I...

Pop Pop's Mustache

For 40 years Ken Ronnebaum has had a mustache. 4-0 years. Longer than I have been alive. His mustache is part of who he is, and his wife,...

I Love You Too Much

We tried to teach Clare how to say "I love you" when she started speaking as a toddler. I would tell her that her that I love her, and...

Clare's Groovy Button

As part of Clare's radiation treatment she will need to be sedated each day. It turns out that 2 year olds are not good at remaining...

What is DIPG?

On Monday, June 18, 2018, Clare was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a brain tumor found in a part of the...

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