Every morning when we stroll into room 11 at Seidman Cancer Center we are greeted by Child Life Specialists. What is a Child Life Special...

Monday's are hard for everyone. Monday's are particularly hard for Clare because her groovy button needs to be accessed so she can recei...

Because our new radiation routine is not exactly fun, we try to have fun before and after the treatment. Clare cannot eat and can only dr...

When Clarie was initially diagnosed Chris and I spent weeks in what I am calling a "fog." And we are still in this weird place where I ha...

For 40 years Ken Ronnebaum has had a mustache. 4-0 years. Longer than I have been alive. His mustache is part of who he is, and his wife,...

We tried to teach Clare how to say "I love you" when she started speaking as a toddler. I would tell her that her that I love her, and sh...

As part of Clare's radiation treatment she will need to be sedated each day. It turns out that 2 year olds are not good at remaining stil...

On Monday, June 18, 2018, Clare was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a brain tumor found in a part of the ...