Bracing for Impact

A few weeks ago I traveled to Orlando for a quick work trip. In fact, I think I spent more time in the Magic Kingdom than I did in a...

The Room Where it Happens

It is not always fun to drive several hours to Cincinnati Children's Hospital every few weeks. It is not always pleasant to be in the...

The Magic of Disney

This past November, Clare and our family were whisked away on an amazing trip to Disney World as part of the Make-A-Wish program. It was...

Clare and Congress

May is Brain Cancer Awareness Month. May 17 is DIPG Awareness Day in several states across the country. We are lucky enough to have these...

An Interview with Clare

1  What two words do you think best describe you? I'm a good listener and I love Mama. 2  What is the best thing about being you? I am...

Superhero Blood

Thursday, April 18, 2019 marked 10 months since Clare's diagnosis. On Wednesday, April 17, 2019 Clare spiked a fever and complained of...

In an Instant

I have always heard people say that your life can change in an instant. And I believed them. But I never thought our life would change...

A Princess & A Pirate

Ahoy! Yo Ho Ho! Did you hear about that new pirate movie? It's rated "Arrrrrrrrrrrrhhhh!" Our sweet little princess has turned into a...

Thank You

I have cried in the shower, in bed, in my car, in the doctors office, in a hospital room, in a waiting room, in my office, in the...

The Little Things

I always thought that I was a grateful person. I was grateful I had a job; I was grateful I had a car; I was grateful I had a house. I...

The Decision

After much deliberation, fielding calls from agents across the country, and one very creepy house call from the dancing old guy at Six...

Luckiest Lady

When Clare was born I said I was the luckiest person in the world. I was lucky in that I was fortunate enough to become a mom, and not...

Clinical Trial

When a child receives a DIPG diagnosis the only standard course of treatment is radiation. After that no one really knows what is best....

Fire Trucks & Flowers

The weekend was spent celebrating those who have battled or are battling cancer. We did this by way of a parade (where we collected 2...

Then vs. Now

I used to be an easy-breezy kind of gal. I wouldn't worry about too many things. Not much would stress me out. This is what I thought...

Two Months

Clare was diagnosed with cancer two months ago. In those two months, Clare has been sedated 33 times and received 30 radiation...

Back to School

Clare returned to school today after a nearly 2 month break. The past two months we had tried to get Clare to stay up late at night and...

30 Never Looked So Good

Today was Clare's 30th and final radiation treatment at Seidman Cancer Center. The initial thought of radiation treatment for a 2 year...

Merry Christmas

Clare was referred to hospice care as soon as she received her diagnosis. It seems unnecessary to meet with hospice social workers and...

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