CarlaFeb 25, 20202 minBracing for ImpactA few weeks ago I traveled to Orlando for a quick work trip. In fact, I think I spent more time in the Magic Kingdom than I did in a...
CarlaSep 27, 20192 minThe Room Where it HappensIt is not always fun to drive several hours to Cincinnati Children's Hospital every few weeks. It is not always pleasant to be in the...
CarlaJul 5, 20192 minThe Magic of DisneyThis past November, Clare and our family were whisked away on an amazing trip to Disney World as part of the Make-A-Wish program. It was...
CarlaMay 28, 20192 minClare and Congress May is Brain Cancer Awareness Month. May 17 is DIPG Awareness Day in several states across the country. We are lucky enough to have these...
CarlaApr 29, 20192 minAn Interview with Clare1 What two words do you think best describe you? I'm a good listener and I love Mama. 2 What is the best thing about being you? I am...
CarlaApr 23, 20193 minSuperhero BloodThursday, April 18, 2019 marked 10 months since Clare's diagnosis. On Wednesday, April 17, 2019 Clare spiked a fever and complained of...
CarlaMar 6, 20192 minIn an InstantI have always heard people say that your life can change in an instant. And I believed them. But I never thought our life would change...
CarlaJan 8, 20191 minA Princess & A PirateAhoy! Yo Ho Ho! Did you hear about that new pirate movie? It's rated "Arrrrrrrrrrrrhhhh!" Our sweet little princess has turned into a...
CarlaDec 3, 20181 minThank YouI have cried in the shower, in bed, in my car, in the doctors office, in a hospital room, in a waiting room, in my office, in the...
CarlaNov 23, 20184 minThe Little Things I always thought that I was a grateful person. I was grateful I had a job; I was grateful I had a car; I was grateful I had a house. I...
CarlaSep 23, 20181 minThe DecisionAfter much deliberation, fielding calls from agents across the country, and one very creepy house call from the dancing old guy at Six...
CarlaSep 11, 20182 minLuckiest LadyWhen Clare was born I said I was the luckiest person in the world. I was lucky in that I was fortunate enough to become a mom, and not...
CarlaSep 5, 20182 minClinical Trial When a child receives a DIPG diagnosis the only standard course of treatment is radiation. After that no one really knows what is best....
CarlaAug 27, 20182 minFire Trucks & FlowersThe weekend was spent celebrating those who have battled or are battling cancer. We did this by way of a parade (where we collected 2...
CarlaAug 25, 20182 minThen vs. NowI used to be an easy-breezy kind of gal. I wouldn't worry about too many things. Not much would stress me out. This is what I thought...
CarlaAug 19, 20182 minTwo MonthsClare was diagnosed with cancer two months ago. In those two months, Clare has been sedated 33 times and received 30 radiation...
CarlaAug 15, 20182 minBack to SchoolClare returned to school today after a nearly 2 month break. The past two months we had tried to get Clare to stay up late at night and...
CarlaAug 10, 20183 min30 Never Looked So GoodToday was Clare's 30th and final radiation treatment at Seidman Cancer Center. The initial thought of radiation treatment for a 2 year...
CarlaAug 5, 20182 minMerry ChristmasClare was referred to hospice care as soon as she received her diagnosis. It seems unnecessary to meet with hospice social workers and...